Welcome to JOIN-HD
We’re building a space for families, researchers, and advocates to come together, share knowledge, and drive progress in the fight against Juvenile Huntington’s Disease.
This site is currently under construction. Some features may be limited or coming soon—thank you for your patience as we grow.
What is JOIN-HD?
JOIN-HD is a global registry for families to share their experiences about living with Juvenile Huntington’s Disease (JHD).
How to Participate
JOIN-HD is an online registry featuring several surveys for the JHD community.
Family Impact of JHD
From changing dynamics to long diagnostic journeys, families are forever changed by JHD.
Become an Advocacy Partner
The need to support and understand the global HD community is crucial for families. Help us create a global movement.
Become a Research Partner
There is currently little to no focus on JHD research. We want to empower researchers to focus on this underserved community.
