We have created a leaflet that can be used to share information about the registry with families impacted by JoHD. Download it here.

 

Registry documents:

Participant Information Sheet.

User guides:

Setting up an account

Posters:

Newsletters:

 

Videos:

Juvenile-HD Impacts – Personal Perspective – https://youtu.be/A_6H38YppLI

Biology of JHD(Research) – https://youtu.be/y7q5H4d8u1c

HDYO Webinar – Juvenile-HD (Family, Research) –  – https://youtu.be/qnQk2N9g8TY

Managing Symptoms of JHD (Button in symptoms section) – https://youtu.be/lYw0a5RjpPw

Challenges with Diagnosing JHD – https://youtu.be/0oNc5NT4b0Q

Living with JHD – https://youtu.be/Sb6YjAfB1H0