Become a Research Partner
The need to support and understand the global HD community is crucial for families. Help us create a global movement.
Advocacy Matters
JHD is not well-understood or known about in many areas of the world. HDYO advocates for that to change through connecting personal experiences with our JOIN-HD registry, so we can share those perspectives to drive research forward. In addition, better understanding allows us to work with our international partners on how to offer better local support to those impacted by JHD. However, we can’t do this alone. We want to create an international movement to help support JHD families.
Become an Advocacy Partner
These goals cannot be done by just a few people by themselves. The JHD community needs as many partners working together as possible to reach families, encourage participation, help us develop resources and much more. If you’re interested in becoming a partner, email registry@hdyo.org.
