Scientific Oversight Committee
HDYO’s JOIN-HD Global Registry is an innovative registry aiming to locate and understand the experiences of patients and caregivers impacted by Juvenile-HD. To tackle this endeavor, we need an equally innovative Scientific Oversight Committee comprised of world-renowned experts. Meet our SOC!
Dr. Martha Nance
Medical Director, Struthers Parkinson’s Center, Clinical Professor of Neurology at University of Minnesota and Director of HD Center of Excellences at Hennepin County Medical Center
Dr. Jean-Marc Burgunder
Professor of Neurology, Senior Consultant in Neurogenetics University of Bern, Head Swiss Huntington Center, Guümligen, Bern
Dr. Leon Dure
Professor & Director of the Division of Pediatric Neurology at the University of Alabama at Birmingham, USA
Helen Santini
Specialist JoHD Adviser for the HDA of England and Wales
Dr. Ferdinando Squitieri
Head of Neurology and Head of Huntington and Rare Diseases Unit, The Mendel Institute of Human Genetics and Scientific Officer and Co-Founder, Lega Italiana Ricerca Huntington, Rome, Italy
Dr. Peggy Nopoulos
Professor of Psychiatry, Pediatrics and Neurology and Chair and DEO, Department of Psychiatry, University of IOWA, USA
Dr. Benjamin Wilfond
Director of the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Professor and Chief of the Division of Bioethics in the Department of Pediatrics at the University of Washington School of Medicine
Dr. Rebecca Mason
Clinical Trials Manager, ICON
