Who’s involved?

JOIN-HD is managed by the Huntington’s Disease Youth Organization (HDYO). The HDYO team involved in the registry are:

  • Dr Lauren Byrne – JOIN-HD Chief Investigator and HDYO Research Committee Co-chair.
  • Dr Rebecca Mason – JOIN-HD Coordinator and HDYO Research Manager.
  • Jenna Heilman – HDYO Executive Director.
  • Dr Bonnie Hennig-Trestman – HDYO Research Committee Co-chair.
  • The HDYO Research Committee.

In addition to the HDYO team, JOIN-HD’s Scientific Oversight Committee and Family Advisory Group provide invaluable input to the registry.