JOIN-HD is managed by the Huntington’s Disease Youth Organization (HDYO). The HDYO team involved in the registry are:
- Dr Lauren Byrne – JOIN-HD Chief Investigator and HDYO Research Committee Co-chair.
- Dr Rebecca Mason – JOIN-HD Coordinator and HDYO Research Manager.
- Jenna Heilman – HDYO Executive Director.
- Dr Bonnie Hennig-Trestman – HDYO Research Committee Co-chair.
- The HDYO Research Committee.
In addition to the HDYO team, JOIN-HD’s Scientific Oversight Committee and Family Advisory Group provide invaluable input to the registry.